Scheduled Brody's First Atresia Repair surgery today for his left canal. :) This is so exciting!!
Thursday April 4 2013 (left canal)
Thursday June 20 2013 (tentatively Right canal)
Now onto the flights and finding a place to stay for 8 days!
Tuesday, February 26, 2013
Sunday, February 24, 2013
Combined vs Seperate Surgeries
We have decided against the combined surgery for Brody boy. In the last post i said we scheduled surgery. Well we did, but now we have changed our minds with the hopes that this is the best thing for Brody.
We have been talking to many families who have a child who has gone threw both the combined surgery as well as individual (separate) surgeries. Through all the family conversations as well as many skype and phone calls with the doctors. We have officially decided to do the separate surgeries for Brody! This means that his very first surgery, they will open his left ear canal. After this surgery we will be able to determine what his middle bones look like and if they are functioning. If they are not functioning he may be a candidate for a "prosthetic" middle ear bones. This we won't know until the Dr goes in and opens the canal. If he is a candidate, this will add an additional surgery to our original 4.
If all goes as planned, our year will be very busy with multiple surgeries, with great hopes that Brody will have normal hearing and 2 NEW BIG BOY EARS!! :)
Here is our tentative plan for his surgeries.
Surgery #1 APRIL Open left ear canal.
Surgery #2 JUNE Open right ear canal.
Surgery #3 AUGUST Left BIG EAR.
Surgery #4 DECEMBER Right BIG EAR!
*with possible additional surgeries for middle ear bones "prosthetic" eithier or both sides
Right now we are waiting to hear back from Dr Roberson's office to get our first surgery date.
Thank you all for the love and support. Also thanks for all the prayers! This is a very big decision for us to make. We can defiantly feel the love all around us. Thank you!! :)
We have been talking to many families who have a child who has gone threw both the combined surgery as well as individual (separate) surgeries. Through all the family conversations as well as many skype and phone calls with the doctors. We have officially decided to do the separate surgeries for Brody! This means that his very first surgery, they will open his left ear canal. After this surgery we will be able to determine what his middle bones look like and if they are functioning. If they are not functioning he may be a candidate for a "prosthetic" middle ear bones. This we won't know until the Dr goes in and opens the canal. If he is a candidate, this will add an additional surgery to our original 4.
If all goes as planned, our year will be very busy with multiple surgeries, with great hopes that Brody will have normal hearing and 2 NEW BIG BOY EARS!! :)
Here is our tentative plan for his surgeries.
Surgery #1 APRIL Open left ear canal.
Surgery #2 JUNE Open right ear canal.
Surgery #3 AUGUST Left BIG EAR.
Surgery #4 DECEMBER Right BIG EAR!
*with possible additional surgeries for middle ear bones "prosthetic" eithier or both sides
Right now we are waiting to hear back from Dr Roberson's office to get our first surgery date.
Thank you all for the love and support. Also thanks for all the prayers! This is a very big decision for us to make. We can defiantly feel the love all around us. Thank you!! :)
Wednesday, February 6, 2013
CT Results. First Surgery Date. Online Auction
Lots of new and exciting progress on the Brody boys upcoming surgery. We sent his CT scan to the California Ear Institute. We received excellent news that he is a canidate for atresia repair.(opening of his canals) This is the news we have been waiting for since he was 2 weeks old! This means that he will be able to do the combined surgery verses 4 seperate surgeries! We are excited for Brody to have this oppurtunity to get "big boy" ears as well as having the oppurtunity to hear without his BAHA's. There is a chance that he will needd a "phase 2 surgery" on one of his ears, but this we won't know until they operate.
We have set up his very first surgery date for August 14th 2013! YEAH! after saying that, I have come to relize that it is only 6 months away and that I have lots to research for flights, hotels, rental cars, post-operation, and the list goes on! The staff at The California Ear Instute (CEI) has been very friendly and helpfull with my 8 million questions!
My old college roommate contacted me and wanted to help us raise funds for Brody. So she asked if she could do an online auction to help spread the word about Brody as well as raise money. I think this is really neat. Currently she is looking for donations of items for the online auction. If you or anyone you know would be willing to donate or would like to bid on something please check out her page at http://www.facebook.com/groups/453566951379176/
Hope you all have a wonderful night!
We have set up his very first surgery date for August 14th 2013! YEAH! after saying that, I have come to relize that it is only 6 months away and that I have lots to research for flights, hotels, rental cars, post-operation, and the list goes on! The staff at The California Ear Instute (CEI) has been very friendly and helpfull with my 8 million questions!
My old college roommate contacted me and wanted to help us raise funds for Brody. So she asked if she could do an online auction to help spread the word about Brody as well as raise money. I think this is really neat. Currently she is looking for donations of items for the online auction. If you or anyone you know would be willing to donate or would like to bid on something please check out her page at http://www.facebook.com/groups/453566951379176/
- 2-22-13. Run till 3-1-13 This page is to List item you are willing to put in Auction to Help Brody.
Hope you all have a wonderful night!
Thursday, January 17, 2013
CT Scan. ENT
Good Evening Everyone!
Today we traveled to Milwaukee to get Brody's CT Scan as well as his annual ENT and Audiologist appointments! It was a long day, but Brody was defiantly a trooper! Mind you we needed to prep for this, (at his 2 year check up he wouldn't let the Dr touch him). But he did PERFECT! He didn't even need the "sleepy medicine" which was great. He sat and watched fishes swim through the ocean! The nurses were wonderful and he even got a special prize after he was finished with the CT Scan.
Our next appointment was was the ENT and there we reviewed the CT Scan results. Our Dr said that he was a "good candidate for atresia repair". With that being said, we will now send the results to Dr Roberson in California for him to review, along with his audio gram.
Finally we met with the Audiologist to do some hearing test and make sure his BAHA's are working properly. Brody was getting tired by this point but did an awesome job stacking blocks to the wonderful pitches of the hearing test. His hearing hasn't changed and still has a moderate - severe hearing loss.
Our next steps will be to send off all the results from today to the California Ear Institute for them to review and then we will set up a phone or skype meeting to talk about the results and to see if he is able to do the atresia repair surgery.
Thank you everyone for your continued thoughts and prayers.
Today we traveled to Milwaukee to get Brody's CT Scan as well as his annual ENT and Audiologist appointments! It was a long day, but Brody was defiantly a trooper! Mind you we needed to prep for this, (at his 2 year check up he wouldn't let the Dr touch him). But he did PERFECT! He didn't even need the "sleepy medicine" which was great. He sat and watched fishes swim through the ocean! The nurses were wonderful and he even got a special prize after he was finished with the CT Scan.
Our next appointment was was the ENT and there we reviewed the CT Scan results. Our Dr said that he was a "good candidate for atresia repair". With that being said, we will now send the results to Dr Roberson in California for him to review, along with his audio gram.
Finally we met with the Audiologist to do some hearing test and make sure his BAHA's are working properly. Brody was getting tired by this point but did an awesome job stacking blocks to the wonderful pitches of the hearing test. His hearing hasn't changed and still has a moderate - severe hearing loss.
Our next steps will be to send off all the results from today to the California Ear Institute for them to review and then we will set up a phone or skype meeting to talk about the results and to see if he is able to do the atresia repair surgery.
Thank you everyone for your continued thoughts and prayers.
Friday, January 4, 2013
1.4.13
Happy New Year! 2013 already!! Brody is now 3! We have Brody's annual check-up with his ENT and audiologist schduled for this month. This is very exciting because we will finally be getting some answers to exactly what is in his little head and what and how we can procede for his surgeries. As his Mom, i'm excited,, but nervous at the same time. My little boy is perfect to me! :) I know that with time, I will be ready to handle this with God in control!
There are some fundraisers coming up in the near future! The Brendan Wegner Memorial Fisheree (see more info here on website) and also a County Bar Crawl. (see facebook for more info)
Wishing you all the best in the new year! I know that we will be having an eventful one!
God Bless!
There are some fundraisers coming up in the near future! The Brendan Wegner Memorial Fisheree (see more info here on website) and also a County Bar Crawl. (see facebook for more info)
Wishing you all the best in the new year! I know that we will be having an eventful one!
God Bless!
Thursday, March 15, 2012
Bowling, Pizzas, & California
Last weekend we took Brody bowling for the first time at the 9 pin bowling fundraiser for Brody and Larry from Princeton. We had a ton of fun. Brody didnt want to stop bowling. We all had a blast... There were lots of people who showed up and filled the bowling alley up. Thanks for all the support... still waiting to here how many bowlers there were. Thank you to everyone who planned and organized the event, it was amazing!
Wednesday night the Papa Murphy's Pizza truck pulled in with 286 pizzas and other goodies like cookie dough and cheesey bread! It was great to see some new faces and also to see faces that i haven't seen in forever! :) Thanks to everyone who bought pizzas and who made the extra effort and sold to all there co-workers and familys! We really appreciate it!
I recieved a phone call from the doctors office in california checking in on Brody and seeing how everything was going. They also reminded me that i need to get his CT scan when he is 3 or close to it... I'm hoping to get it schduled for this fall sometime, since he will be 3 in November. Getting the call makes me nervous that his surgery is going to be here soon!
Hope everyone is enjoying this beautiful weather... 70's in March!
Wednesday night the Papa Murphy's Pizza truck pulled in with 286 pizzas and other goodies like cookie dough and cheesey bread! It was great to see some new faces and also to see faces that i haven't seen in forever! :) Thanks to everyone who bought pizzas and who made the extra effort and sold to all there co-workers and familys! We really appreciate it!
I recieved a phone call from the doctors office in california checking in on Brody and seeing how everything was going. They also reminded me that i need to get his CT scan when he is 3 or close to it... I'm hoping to get it schduled for this fall sometime, since he will be 3 in November. Getting the call makes me nervous that his surgery is going to be here soon!
Hope everyone is enjoying this beautiful weather... 70's in March!
Saturday, January 28, 2012
pizza, bowling and thanks
Thank you to Liz Dahlke, Chad Isberner and The Brendan Wegner Family for allowing Brody to be part of the memorial fisheree. Brody was bummed out that it was too cold that he wasn't able to go ice fishing but I was able to attend and saw all of the wonderfull people coming out to fish and remember Brendan. And the food was hot and tasty!
Our last Papa Murphy's fundraiser was such a success, people were requesting more pizza. So we decided to do the Papa Murphy's pizza fundraiser again. Sold 300 pizzas last time, hoping to double that this time around. If you would like more info please visit www.brodyhenke.com and click on the pizza fundraiser tab. Or email ashleyhenke16@gmail.com Pizza orders are due March 7th. Thank you to everyone who is helping sell pizzas, also if you would like to help sell, email me and i will get you all the information! :)
The Princeton Lions are having a "bowling fundraiser" for brody and another individual from Princeton on March 10th. They will have raffles, 50-50 raffle, and lots of bowling. Check back for more details....
If you haven't "liked" Brody's Harvest for Hearing on Facebook, please do to keep updated on all fundraisers and updates with Brody's progress... Thanks
Do you watch American Idol? There is a gentleman on there who was born with Microtia. check out brody's facebook page for the link to see his audition... He made it to Hollywood so you will be able to follow him.
Our last Papa Murphy's fundraiser was such a success, people were requesting more pizza. So we decided to do the Papa Murphy's pizza fundraiser again. Sold 300 pizzas last time, hoping to double that this time around. If you would like more info please visit www.brodyhenke.com and click on the pizza fundraiser tab. Or email ashleyhenke16@gmail.com Pizza orders are due March 7th. Thank you to everyone who is helping sell pizzas, also if you would like to help sell, email me and i will get you all the information! :)
The Princeton Lions are having a "bowling fundraiser" for brody and another individual from Princeton on March 10th. They will have raffles, 50-50 raffle, and lots of bowling. Check back for more details....
If you haven't "liked" Brody's Harvest for Hearing on Facebook, please do to keep updated on all fundraisers and updates with Brody's progress... Thanks
Do you watch American Idol? There is a gentleman on there who was born with Microtia. check out brody's facebook page for the link to see his audition... He made it to Hollywood so you will be able to follow him.
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